Earlier on this blog I explained about Idiopathic Pulmonary Fibrosis – a progressive condition of the lungs. In the last couple of weeks I sort of dropped off a cliff. I had been doing pretty well, slow and easily fatigued but had a bad bout of coughing.
A couple of weeks ago I had a CT scan and it shows some progression of the fibrosis. The upshot of it all is that they put me on the oxygen. I am hoping that will restore some energy -but taking it day to day. I will be getting a portable concentrator to give me a bit more freedom. The little bottles are 2 hours – the concentrator 7-8 on battery. Have a concentrator at home – with a long tube for going all over the house. My version of “golden lasso”
I was on prednisone for 2 weeks and came off cold turkey – have suffered fever and chills and extreme fatigue -but on the mend -nothing infectious shows up. Unlike the lungs — everything else is in great shape and having the oxygen will help keep everything that way I hope.
I see a new pulmonologist next week. My old one is retiring. In the meantime I cannot say enough about my provider at Cannon Beach Providence. She has really taken me seriously and is on top of everything — trying to give me more quality of life.
Happy to answer questions – but prefer no advice – try not to speculate on what this means. I don’t know yet.
October 6 is the funeral for my sister in law who died this week. We sat with her body and told stories- laughed and cried. I did prayers and anointing. Prayers for all the family. She was our family’s chief hostess and loved having everyone around. No matter when you showed up she would whip up a meal for you and make you welcome. The last few years she had Alzheimers (or similar condition) these last few years – though she still remembered all of us. An overwhelming infection killed her.
Jim has been amazing — feel very cared for. Kristin has been here for a few weeks- very lovely. John our son and Quinn, our grandchild (18 years old now!) come for a visit this week. Great summer seeing all the kids and grands.
Photos: My life this year – before September 1 and after.