Archive for October 2014

Update 2.1

   After being off the drug for a week I feel so much better. My energy and appetite are back. I know the long term consequences of not having any medication for IPF but looking at the positives. Feeling great, no more encounters with my “study director” and her patronizing ways are all good. Also…

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Not such good news: lung update #2

Well– discovered that I am part of the few who can’t take pirfenidone. 3 in a thousand have a liver reaction– so that is what my blood tests showed today. A disappointing development as currently it is the only drug that stops the progression of the fibrosis.  Taking it in for now – see my…

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